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June 20th, 2022
This June, for World Scleroderma Month 2022, Scleroderma Australia is shining a golden light across Australia to help raise awareness of scleroderma. Australia is lighting up again! Throughout June, iconic buildings and landmarks across Australia will be bathed in a golden glow to celebrate World Scleroderma month and help Scleroderma Australia raise awareness through their
Continue reading australia gets ready to shine like a sunflower to raise scleroderma awareness
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June 2nd, 2022
Our May Virtual Education Session covered ‘Social Security and Your Rights’. We were fortunate to have guest speaker Elizabeth Divers (Liz), a community lawyer from Social Security Rights Victoria (SSRV). SSRV is an independent state-wide community legal centre that specialises in social security and related law, policy and procedure. SSRV provides free legal services to
Continue reading social security and your rights: highlights from our may virtual education session
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May 10th, 2022
Scleroderma Victoria welcomes a new editor to its committee We are thrilled that Georgie Waters has joined the Scleroderma Committee as our newsletter editor. Georgie loves to write, and has a background in linguistics with a Bachelor of Speech, Language and Hearing. Georgie is passionate about increasing public awareness of under-represented health conditions, particularly scleroderma.
Continue reading welcome to volunteer editor georgie waters
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March 28th, 2022
In our February Virtual Education Session, guest Speaker Dr Brett Thombs joined us to talk about ‘Scleroderma and Mental Health’. He discussed what we know about the impact rare diseases can have on mental health, how the pandemic affected people with scleroderma, and everyday ways to improve mental health. SPIN – Helping people live
Continue reading 6 ways to improve your mental health when living with scleroderma
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February 19th, 2022
Covid may have impacted our social lives, but it allowed the virtual world to enter our homes easily and conveniently. We responded to this new reality by going virtual. Knowledge is power, and here at Scleroderma Victoria, we want you to have all the knowledge you need to be empowered and informed. Through these Virtual
Continue reading virtual education sessions
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January 14th, 2022
At Scleroderma Victoria, our aim is to support people with scleroderma through support groups, educational talks, research fundraising, and much more. This is all made possible by the generous support of people with scleroderma, their family and friends, and the wider community. In fact, we at Scleroderma Victoria rely on generosity to do what we
Continue reading how to leave a lasting legacy with a bequest to scleroderma victoria
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December 2nd, 2021
The financial year of 2020-2021 was another challenging year for the scleroderma community and beyond. But, despite the pandemic and lockdowns, we at Scleroderma Victoria had more than enough achievement to be proud of. We spent our Annual General Meeting reflecting on some of the highs and lows of the year and wrapping
Continue reading missed the annual general meeting? here’s a wrap up
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November 7th, 2021
So you’re interested in raising money for a good cause — fantastic. Your efforts will be appreciated and will make a great difference in the community. When it comes to fundraising for scleroderma causes, we have a few guidelines and tips to help. Here’s how you can team up with us at Scleroderma Victoria to
Continue reading how to run a scleroderma fundraiser and become a sunflower hero
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October 18th, 2021
A third dose of COVID-19 vaccine has been recommended for people who are severely immunocompromised. The recommendation comes from the Australian Technical Advisory Group on Immunsations (ATAGI), which advises the Australian Government on immunisations. Because scleroderma is a condition that affects immunity, scleroderma patients may be among those who are eligible to get the third
Continue reading third dose of covid-19 vaccine recommended for people who are severely immunocompromised
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September 27th, 2021
Been to Our Virtual Education Sessions? Tell Us Why or Why not Have you always wanted to come to a Virtual Education Session and never had the time? Perhaps you never found the topics relevant, or you’ve never even heard of these sessions before now. Whatever the case may be, we want to know! Share
Continue reading feedback wanted! scleroderma virtual education sessions
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July 20th, 2021
Our Scleroderma support groups are invaluable to many of our Scleroderma Victoria members. But if you’ve never been to a support group before, you might be wondering what actually goes on in one. In this Q&A, we answer some common questions about Scleroderma support groups to help you decide whether you want to join. What
Continue reading everything you ever wanted to know about scleroderma support groups
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April 26th, 2021
Our Virtual Education Sessions are a great way to get support with the day-to-day of scleroderma and to connect with us here at Scleroderma Victoria. Always insightful, these sessions run on the second Saturday of every month. In October, we discussed skin, hands, and Raynaud’s phenomenon. In case you missed it, or just need a
Continue reading skin, hands & raynaud’s: take-aways from the virtual education sessions
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July 18th, 2022
Renee Gleeson is an accredited practising dietician and joined us for a virtual education session to discuss helping to manage your health through diet. Scleroderma symptoms vary from person to person, so having a range of tips and tricks to help you manage the symptoms you’re experiencing is key. Small, regular meals Renee suggests trying
Continue reading how to help manage your scleroderma symptoms through a healthy diet
