Scleroderma Victoria Event Update

Posted on March 24th, 2020

The health and safety of every person affected by scleroderma is of vital importance to Scleroderma Victoria Incorporated. Our Committee takes very seriously the threat the coronavirus presents to individuals living with scleroderma, who are of course immunocompromised and vulnerable with the current escalation of COVID-19 in our community.  As such, Scleroderma Victoria have cancelled

Target 400

Posted on June 12th, 2019

In commemorating 40 years of Scleroderma Victoria, we are committed to continuing our great work to support our community. Scleroderma Victoria needs the support of those with scleroderma, their family and friends and the wider community to create awareness and support each other.   But we can’t do it without you! We have set ourselves

Scleroderma Victoria turns 40

Posted on May 27th, 2019

In 1979 Dr Alf Barnett introduced three of his Scleroderma patients to each other. They went on to form Scleroderma Victoria. We would like to mark our achievement of 40 years of providing support for people with Scleroderma, along with their family and friends, increasing community awareness of Scleroderma and supporting research into this chronic

NDIS – How it can work for you!

Posted on December 13th, 2018

The most important thing to know is how do you meet the criteria to be eligible for the NDIS. From the perspective of Scleroderma, it is about thinking of the definition of disability. Your GP or Specialist needs to demonstrate the ‘how’ instead of the ‘what’ and determine the impact on your daily activities. For

World Scleroderma Day Events 2018

Posted on July 1st, 2018

Thank you to the Grand Hotel Richmond for hosting our inaugural World Scleroderma Day lunch on June 30, 2018. Dyson Heppell, our Ambassador came along to do a quick Q&A on his great work in raising awareness and funds to support Mr H and Scleroderma. A Silent Auction with some great items from Dyson and

Get behind the beard

Posted on June 1st, 2018

Friday 29th June 2018 is World Scleroderma Day. And on this day Dyson Heppell, Captain of Essendon F C, will shave off his beard. Dyson Heppell and his little mate Harrison, or “Mr H” as he is often called are running a campaign throughout June called “Get behind the beard” to raise much needed funds

Change 4 Scleroderma

Posted on May 31st, 2018

Help us celebrate World Scleroderma Awareness Month and collect your spare change throughout the month of June. It’s easy – whether its a tin or a jar, its up to you. Slap on a sticker, and collect all the spare change you can. At the end of the month, put the change into the bank!