Australia gets ready to Shine Like A Sunflower to raise scleroderma awareness

Posted on June 20th, 2022

This June, for World Scleroderma Month 2022, Scleroderma Australia is shining a golden light across Australia to help raise awareness of scleroderma. Australia is lighting up again! Throughout June, iconic buildings and landmarks across Australia will be bathed in a golden glow to celebrate World Scleroderma month and help Scleroderma Australia raise awareness through their

Social Security and Your Rights: Highlights from our May Virtual Education Session

Posted on June 2nd, 2022

Our May Virtual Education Session covered ‘Social Security and Your Rights’. We were fortunate to have guest speaker Elizabeth Divers (Liz), a community lawyer from Social Security Rights Victoria (SSRV). SSRV is an independent state-wide community legal centre that specialises in social security and related law, policy and procedure. SSRV provides free legal services to

Welcome to volunteer editor Georgie Waters

Posted on May 10th, 2022

Scleroderma Victoria welcomes a new editor to its committee We are thrilled that Georgie Waters has joined the Scleroderma Committee as our newsletter editor. Georgie loves to write, and has a background in linguistics with a Bachelor of Speech, Language and Hearing. Georgie is passionate about increasing public awareness of under-represented health conditions, particularly scleroderma.

6 Ways To Improve Your Mental Health When Living With Scleroderma

Posted on March 28th, 2022

In our February Virtual Education Session, guest Speaker Dr Brett Thombs joined us to talk about ‘Scleroderma and Mental Health’. He discussed what we know about the impact rare diseases can have on mental health, how the pandemic affected people with scleroderma, and everyday ways to improve mental health.   SPIN – Helping people live

Virtual Education Sessions

Posted on February 19th, 2022

Covid may have impacted our social lives, but it allowed the virtual world to enter our homes easily and conveniently. We responded to this new reality by going virtual. Knowledge is power, and here at Scleroderma Victoria, we want you to have all the knowledge you need to be empowered and informed. Through these Virtual

How to Leave a Lasting Legacy with a Bequest to Scleroderma Victoria

Posted on January 14th, 2022

At Scleroderma Victoria, our aim is to support people with scleroderma through support groups, educational talks, research fundraising, and much more. This is all made possible by the generous support of people with scleroderma, their family and friends, and the wider community. In fact, we at Scleroderma Victoria rely on generosity to do what we

Third dose of COVID-19 vaccine recommended for people who are severely immunocompromised

Posted on October 18th, 2021

A third dose of COVID-19 vaccine has been recommended for people who are severely immunocompromised. The recommendation comes from the Australian Technical Advisory Group on Immunsations (ATAGI), which advises the Australian Government on immunisations. Because scleroderma is a condition that affects immunity, scleroderma patients may be among those who are eligible to get the third

Everything You Ever Wanted to Know About Scleroderma Support Groups

Posted on July 20th, 2021

Our Scleroderma support groups are invaluable to many of our Scleroderma Victoria members. But if you’ve never been to a support group before, you might be wondering what actually goes on in one. In this Q&A, we answer some common questions about Scleroderma support groups to help you decide whether you want to join. What

Skin, Hands & Raynaud’s: Take-aways from the Virtual Education Sessions

Posted on April 26th, 2021

Our Virtual Education Sessions are a great way to get support with the day-to-day of scleroderma and to connect with us here at Scleroderma Victoria. Always insightful, these sessions run on the second Saturday of every month. In October, we discussed skin, hands, and Raynaud’s phenomenon. In case you missed it, or just need a

How to help manage your scleroderma symptoms through a healthy diet

Posted on July 18th, 2022

Renee Gleeson is an accredited practising dietician and joined us for a virtual education session to discuss helping to manage your health through diet. Scleroderma symptoms vary from person to person, so having a range of tips and tricks to help you manage the symptoms you’re experiencing is key. Small, regular meals Renee suggests trying