Light Up Australia for Sunflower Day 2025 – Help Us Raise Funds & Awareness for Scleroderma!

Posted on January 24th, 2025

Sunflower Day is coming up on 6th March, and it’s more than just a date on the calendar—it’s a beacon of hope for over 6000 Australians living with scleroderma. As part of an ongoing mission, Scleroderma Australia is leading the charge to raise awareness and support for this rare and challenging condition. We invite you

Healthy Discussions from Office of the Public Advocate Victoria

Posted on December 23rd, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by speakers from the Office of the Public Advocate, an independent body that works to protect and promote the rights, interests, and dignity of people with disabilities and mental health conditions in Victoria, Australia. For more free resources, access our

Dr Andrew Pengilley’s Insights into Regulatory Issues with Access to Medicines for Scleroderma

Posted on November 13th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Andrew Pengilley, a public health physician with over 24 years of experience working in various areas of public health within the Commonwealth and State and Territory Governments. For the past five years he has been a Principal Medical

Dr Tracy Frech on Wound and Preventative Care in Scleroderma

Posted on October 15th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Tracy Frech, the Division Director of Rheumatology at Vanderbilt University Medical Center, who is a specialist in scleroderma. She is presently working on research in collaboration with other centres on the importance of early intervention and patient feedback

Scleroderma and Stem Cell Transplants: Ground-breaking Updates from Dr Hudson

Posted on September 18th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Marie Hudson, a rheumatologist and epidemiologist affiliated with the Jewish General Hospital and the Lady Davis Institute in Montreal. As an Associate Professor at McGill University, she leads research efforts that focus on innovative therapeutic approaches. Dr Hudson

Scleroderma and Pregnancy: Highlights from our August Virtual Education Session

Posted on August 14th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Laura Hummers, an associate professor of medicine and co-director of John Hopkins Scleroderma Centre. She is also a clinical director in the division of Rheumatology, making her an incredible resource for all things Scleroderma.  This article shares Laura’s

Pillars for Health: Insights from July 2024 VES

Posted on July 17th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Charmaine Jones, a retired Canadian physician who developed an inflammatory autoimmune arthritis like RA in 2015. After diagnosis Charmaine researched functional medicine which strives to understand the underlying causes of the autoimmune condition and to learn what she might

Discovering Pathways: A Nurse-Led Approach to Telehealth Pathways

Posted on June 11th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Kate Holliday, an advanced practice nurse in rare and genetic conditions. Kate has master degrees in both health promotion and health science, is a community engagement expert and has worked in the health sectors for more than 20 years.

Understanding Diagnostic Testing: Insights from Dr Jessica Gordon

Posted on May 14th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Jessica Gordon, an expert in rheumatology specialising in systemic sclerosis (SSc). Dr Gordon is an associate attending physician in the division of Rheumatology at a hospital for special surgery, where she also serves as a professor of clinical

Scleroderma Research: What’s Here and What’s Coming? With Dr Hugo Stephenson

Posted on April 18th, 2024

This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Hugo Stephenson, an Australian doctor, specialist in medical research, and founder of several biotechnology service companies, including MediGuard and Health Research Solutions. He is also an active advocate of drug safety research and consumer health awareness. This article