Scleroderma and the Workplace: Insights from March VES
Posted on
March 19th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Amanda, Kate, and Dylan. Amanda is the Chair of the Board for Scleroderma Australia and the President for Scleroderma Victoria. She has a background as an access and inclusion consultant and in the disability employment sector, developing disability action
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Grief and Scleroderma: Insights from Laura Dyas
Posted on
February 12th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Laura Dyas, a Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) training director and SPIN-SSLED English program instructor. She has an extensive background in grief and loss and work in the state of Michigan, starting her not for
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Light Up Australia for Sunflower Day 2025 – Help Us Raise Funds & Awareness for Scleroderma!
Posted on
January 24th, 2025
Sunflower Day is coming up on 6th March, and it’s more than just a date on the calendar—it’s a beacon of hope for over 6000 Australians living with scleroderma. As part of an ongoing mission, Scleroderma Australia is leading the charge to raise awareness and support for this rare and challenging condition. We invite you
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Healthy Discussions from Office of the Public Advocate Victoria
Posted on
December 23rd, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by speakers from the Office of the Public Advocate, an independent body that works to protect and promote the rights, interests, and dignity of people with disabilities and mental health conditions in Victoria, Australia. For more free resources, access our
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Dr Andrew Pengilley’s Insights into Regulatory Issues with Access to Medicines for Scleroderma
Posted on
November 13th, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Andrew Pengilley, a public health physician with over 24 years of experience working in various areas of public health within the Commonwealth and State and Territory Governments. For the past five years he has been a Principal Medical
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Dr Tracy Frech on Wound and Preventative Care in Scleroderma
Posted on
October 15th, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Tracy Frech, the Division Director of Rheumatology at Vanderbilt University Medical Center, who is a specialist in scleroderma. She is presently working on research in collaboration with other centres on the importance of early intervention and patient feedback
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Scleroderma and Stem Cell Transplants: Ground-breaking Updates from Dr Hudson
Posted on
September 18th, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Marie Hudson, a rheumatologist and epidemiologist affiliated with the Jewish General Hospital and the Lady Davis Institute in Montreal. As an Associate Professor at McGill University, she leads research efforts that focus on innovative therapeutic approaches. Dr Hudson
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Scleroderma and Pregnancy: Highlights from our August Virtual Education Session
Posted on
August 14th, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Laura Hummers, an associate professor of medicine and co-director of John Hopkins Scleroderma Centre. She is also a clinical director in the division of Rheumatology, making her an incredible resource for all things Scleroderma. This article shares Laura’s
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Pillars for Health: Insights from July 2024 VES
Posted on
July 17th, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Charmaine Jones, a retired Canadian physician who developed an inflammatory autoimmune arthritis like RA in 2015. After diagnosis Charmaine researched functional medicine which strives to understand the underlying causes of the autoimmune condition and to learn what she might
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Discovering Pathways: A Nurse-Led Approach to Telehealth Pathways
Posted on
June 11th, 2024
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Kate Holliday, an advanced practice nurse in rare and genetic conditions. Kate has master degrees in both health promotion and health science, is a community engagement expert and has worked in the health sectors for more than 20 years.
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