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Geelong SPIN Social Support Group – 9 November 2026
November 9, 2026
Date: 9 November 2026
Time: 11:30 am
Location: Geelong RSL – 50 Barwon Heads Rd, Belmont, VIC, 3216SPIN Support Groups are facilitated by trained and certified leaders who have completed the SPIN SSLED program. These groups provide a safe, inclusive environment where participants can share experiences, build friendships, and access accurate, evidence-based information. With a strong focus on education, empowerment, and health literacy, SPIN groups help members feel confident navigating health systems and advocating for themselves. New financial members are always welcome, and this is a safe space to bring family and friends who support you.
For more details or to RSVP, email Janelle Blight on: supportgroups@sclerodermavictoria.com.au
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Men’s Online Support Group – 9 November 2026
November 9, 2026
Date: 9 November 2026
Time: 7.30 pm
Location: OnlineThe Lung Foundation Australia is proud to be partnering with Scleroderma Australia to provide an online community for men living with Scleroderma or caring for someone who is. This is a space to listen to each other’s experiences without judgment, share stories, resources, questions and tips, and to encourage each other to manage this condition. To join this welcoming and private community, express your interest by reaching out to us at hello@sclerodermaaustralia.com.au. These meetings are held online on the second Monday of each month from 7.30 pm AEDT.
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Inner South Eastern Peer Support Group – 10 November 2026
November 10, 2026
Date: 10 November 2026
Time: 11:30 am
Location: RSL Bentleigh – 538 Centre Road, Bentleigh, 3204, VICPeer Support Groups offer a welcoming blend of social connection and gentle structure. While they aren’t led by certified facilitators, our group leaders understand our organisation’s purpose and values, helping to guide the conversation in a supportive and inclusive way. These sessions include relaxed chats, discussion topics, and organisational updates, along with helpful resources to build health literacy and strengthen self‑advocacy.
We’d love you to join us. New financial members are always welcome, and you’re encouraged to bring along family or friends who support you. It’s a safe, respectful space where everyone is valued.
For more details or to RSVP, email Bron Robinson on: fundraising@sclerodermavictoria.com.au
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Virtual Education Session- Feel Better, Live Better: The SPIN-SELF Program (Nov 2026)
November 14, 2026
Date: 14 November 2026
Time: 10:30 am – 12:00 pm
Location: Online – Google MeetOur virtual education sessions provide accessible, expert-led learning for people living with scleroderma, their families, and the wider community. Each session delivers practical insights, lived‑experience perspectives, and up‑to‑date information to empower participants, build knowledge, and support better health and wellbeing—no matter where they are located.
We are delighted to welcome Dr Brett Thombs, SPIN Director, and Tracy Mieszczak, a trained SPIN-SELF peer facilitator who has helped guide participants through the program. They will share the story behind SPIN-SELF, the evidence supporting its success, and how people living with scleroderma can access this free resource.
Whether you are newly diagnosed, have been living with scleroderma for many years, or support someone who has the condition, this session will provide practical tools, valuable insights, and hope for living well with scleroderma.
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Western Australia/Perth Support Group – 20 November 2026
November 20, 2026
Date: 20 November 2026
Time: 10.30 am
Location: Bodhi Tree Cafe, 1/416–418 Oxford St, Mount Hawthorn WASocial Support Groups are relaxed, informal gatherings where people living with Scleroderma can connect, share experiences, and build friendships. These meetups focus on casual conversation and emotional support in a friendly environment, without structured activities or formal facilitation. New financial members are always welcome, and this is a safe space to bring family and friends who support you.
For more details or to RSVP, email Justine Jackson on: supportgroups@sclerodermavictoria.com.au
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Save the Date: What’s New in Scleroderma Research?
November 21, 2026
Scleroderma Victoria is delighted to share that the Scleroderma Patient-centered Intervention Network (SPIN), in collaboration with 14 scleroderma organisations from around the world, will once again host its highly anticipated online event:
What’s New in Scleroderma Research: An Online Event for Patients & Families
This unique event brings together researchers and people with lived experience to co-present the latest developments in scleroderma research. Importantly, all presentations are selected by a patient panel and designed to make research accessible, practical and relevant for people living with scleroderma, their families and carers.
Whether you want to learn about emerging research, better understand developments in care and treatment, or simply stay informed about the global scleroderma landscape, this event is not to be missed.
Date: 21 November 2026
Format: Online
Sessions: Separate English and French eventsThis is a wonderful opportunity to hear directly from leading researchers and patient partners about the work that is shaping the future of scleroderma care and support.
Making research accessible, understandable and meaningful for people living with scleroderma.
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Scleroderma Australia National Online Support Group – 28 November 2026
November 28, 2026
Date: 28 November 2026
Time: 10:00 am (AEDT)
Location: Online via ZoomHosted by Scleroderma Australia
hello@sclerodermaaustralia.com.au
Join our National Monthly Online Support Group from the comfort of your home! Connect with others who are living with or supporting someone with scleroderma. Share your experiences, and find encouragement in a relaxed, friendly online setting and learn from one another. Whether you’re new or returning, everyone’s welcome to chat, listen, and support each other. No need to travel, just log in, especially if you’re unable to access a local, state-based support group.
Register for Scleroderma Australia National Online Support Group – 28 November 2026
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Scleroderma Victoria AGM 2026
November 28, 2026
Join us on Saturday 28 November for our 2026 Annual General Meeting. Registration at 1:00 pm at the RACV Club, 501 Bourke St, Melbourne.
Our guest speakers are A/Prof Wendy Stevens from the Australian Scleroderma Interest Group (ASIG), and Jan Elliott who is a former President of Scleroderma Victoria and the trailblazer who helped start Scleroderma Australia.
This event is FREE for financial members of Scleroderma Victoria.
Non members $60.00.
Friends and family can join Scleroderma Victoria under our “Friends and Family discount” for only $15.00. Join via SV TidyHQ.
We are currently seeking a small number of new Committee Members and volunteers who are passionate about making a difference. Please see how you can Step Up & Help Shape Scleroderma Victoria’s Future.
We hope to see as many of our members there as possible.
Please note that all non-financial member purchased tickets include a booking fee.
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North Eastern Social Support Group – 2 December 2026
December 2, 2026
Date: 2 December September 2026
Time: 12.30 pm
Venue: The Old England Hotel, 459 Lower Heidelberg Road, HeidelbergHosted by Jane Ryder
Social Support Groups are relaxed, informal gatherings where people living with Scleroderma can connect, share experiences, and build friendships. These meetups focus on casual conversation and emotional support in a friendly environment, without structured activities or formal facilitation.
We’d love for you to join us! New financial members are always welcome, and this is a safe space to bring family and friends who support you.
For more details or to RSVP, email Jane Rhyder on: supportgroups@sclerodermavictoria.com.au
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Western Suburbs Social Support Group – 2 December 2026
December 2, 2026
Date: 2 December 2026
Time: 12.00 noon
Location: Taylors Lakes Hotel, 7 Melton Hwy, Taylors Lakes, VIC, 3038Hosted by: Marissa Allen
Social Support Groups are relaxed, informal gatherings where people living with Scleroderma can connect, share experiences, and build friendships. These meetups focus on casual conversation and emotional support in a friendly environment, without structured activities or formal facilitation. New financial members are always welcome, and this is a safe space to bring family and friends who support you.
For more details or to RSVP email us at:
supportgroups@sclerodermavictoria.com.au
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Mornington/Westernport SPIN Support Group – 5 December 2026
December 5, 2026
Date: 5 December 2026
Time: 10.30 am
Location: Mornington Community Centre - 3/91 Wilsons Road, Mornington, VIC, 3931SPIN Support Groups are led by trained and certified facilitators who have completed the SPIN SSLED program, ensuring a supportive, knowledgeable, and inclusive environment. These groups offer a safe space to share experiences, build meaningful connections, and access accurate, evidence‑based information tailored to people living with Scleroderma. With a strong focus on education, empowerment, and health literacy, SPIN groups help members feel more confident navigating health systems and advocating for their needs.
We’d love you to join us. New financial members are always welcome, and you’re encouraged to bring family or friends who support you. It’s a safe, welcoming community where everyone is respected and valued.
For more details or to RSVP, email Louise Inglese on: vicepresident@sclerodermavictoria.com.au
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Inner South Eastern Peer Support Group – 8 December 2026
December 8, 2026
Date: 8 December 2026
Time: 11:30 am
Location: RSL Bentleigh – 538 Centre Road, Bentleigh, 3204, VICPeer Support Groups offer a welcoming blend of social connection and gentle structure. While they aren’t led by certified facilitators, our group leaders understand our organisation’s purpose and values, helping to guide the conversation in a supportive and inclusive way. These sessions include relaxed chats, discussion topics, and organisational updates, along with helpful resources to build health literacy and strengthen self‑advocacy.
We’d love you to join us. New financial members are always welcome, and you’re encouraged to bring along family or friends who support you. It’s a safe, respectful space where everyone is valued.
For more details or to RSVP, email supportgroups@sclerodermavictoria.com.au
