We support people living with scleroderma to feel informed, connected and empowered.
At Scleroderma Victoria, we’re here to ensure no one faces scleroderma alone.
We provide support, reliable information, and opportunities to connect, helping people feel informed, empowered, and part of a community that understands.
We do this by:
- Supporting people and families through connection and shared experiences
- Providing trusted information and education
- Advocating for better awareness and outcomes
- Building partnerships that strengthen support and services
Our Purpose
Scleroderma Victoria exists to improve the lives of people affected by scleroderma through support, advocacy, and education.
In accordance with our model rules:
- to provide mutual support and help among members.
- to learn more about the disease, Scleroderma.
- to bring informed knowledge of Scleroderma and the needs and problems of Scleroderma patients to the notice of the general public and the Medical Profession.
- to encourage research and to raise funds for this purpose.
Support Groups
Our support groups provide a safe and welcoming space for people living with scleroderma, along with their families, carers and supporters, to connect with others who understand the challenges of the condition. Through shared experiences, practical information and peer support, our groups help reduce isolation and build a strong sense of community.
We offer both local face-to-face support groups and a national online support group, making it easy to connect wherever you live in Australia. Whether you are newly diagnosed or have been living with scleroderma for many years, our support groups offer friendship, understanding, encouragement and hope.
Contact: supportgroups@sclerodermavictoria.com.au
Working Nationally: Scleroderma Australia
Scleroderma Victoria is part of a national network through our close partnership with Scleroderma Australia, the peak body representing people affected by scleroderma across the country.
Scleroderma Australia operates a federated model, with representatives from each state and territory – including Victoria – contributing to the national Board. This ensures that local experiences and priorities help shape national direction.
Together, we work to:
- Promote awareness of scleroderma across Australia
- Support and strengthen state-based organisations
- Coordinate and advocate for research initiatives
- Share knowledge, resources, and best practice
This collaboration means our members benefit not only from local support, but also from a strong, coordinated national voice working to improve outcomes for everyone affected by scleroderma.
Virtual Education Sessions
Scleroderma Victoria hosts a monthly Virtual Education Series (VES) on the second Saturday of each month, bringing people together to learn from a diverse range of expert speakers on topics relevant to living with scleroderma. Sessions cover everything from clinical insights and pain management to wellbeing and navigating the health system. With presenter consent, these sessions are recorded and made available on our YouTube channel, so you can revisit them at any time. We also publish a monthly blog recap in our News section, capturing key insights and takeaways. You can subscribe via Eventbrite to stay up to date and never miss an upcoming session or topic.
Scleroderma Clinical Nurses
Scleroderma Victoria proudly supports dedicated ASIG (Australian Scleroderma Interest Group) Clinical Nurses who play a vital role in specialist scleroderma care.
We part-fund these positions to ensure people attending scleroderma clinics receive the support they need, helping to bridge gaps in care and improve patient outcomes.
Our ASIG nurses also contribute to the Australian Scleroderma Cohort Study (ASCS), helping collect important data that strengthens research, improves understanding, and drives better treatment and care.
How they support you
Our Scleroderma Clinical Nurses provide:
- Education and advice on managing symptoms, including wound care
- Support before, during and after clinic appointments
- Guidance on tests, treatments, and navigating the health system
- Contribution to national research through the ASCS
They are often the first point of contact for people attending scleroderma clinics—providing practical support and a trusted, knowledgeable connection.
Scleroderma Clinic Locations
Monash Medical Centre
246 Clayton Rd, Clayton VIC 3168
Monday to Thursday
03 9594 3566
St Vincent’s Hospital
41 Victoria Parade, Fitzroy VIC 3065
Monday, Tuesday, Thursday, Friday
03 9231 3983
You will need a referral from your GP, rheumatologist, or specialist to access these clinics.
Tasmania – Royal Hobart Hospital
Emma Bavage – Clinical Nurse Consultant (Rheumatology)
Royal Hobart Hospital
8 Liverpool St, Hobart TAS 7000
03 6166 7659
Scleroderma Victoria is working to continue funding this important role. We encourage people to become financial members to help sustain this vital service.
Oral Medicine for Scleroderma
The Oral Medicine Department at the Royal Dental Hospital of Melbourne offers a specialised pathway for people with scleroderma.
Scleroderma can affect oral health, including:
- Tightening of the mouth (microstomia)
- Dry mouth and salivary changes
- Jaw pain or ulcers
This clinic focuses on assessment and management of these specific conditions, rather than general dental care.
What to expect
- Individual assessment of scleroderma-related oral changes
- Tailored advice and management plans
- Guidance for your dentist or oral health provider
If you hold a Health Care Card or Pension Card, you may be eligible for general dental care through other public dental services.
How to access the clinic
A referral is required from your GP, specialist, or health provider
Referral details:
Oral Medicine Department
Royal Dental Hospital of Melbourne
720 Swanston Street, Carlton VIC 3053
03 9341 1000