Understanding Scleroderma and the NDIS with Alex Rosenthal
Posted on
November 19th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Alex Rosenthal, a branch manager at the engagement and inclusion branch of the National Disability Insurance Agency (NDIA) which runs this NDIS. This engagement and inclusion team are responsible for community engagement, work closely with national disability representative organisations,
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Understanding Scleroderma and Morphoea: Insights into Diagnosis, Management and Patient Care with Associate Professor Amanda Saracino
Posted on
October 21st, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Associate Professor Amanda Saracino, a fellow of the Australian College of Dermatologists and an associate professor with the University of London. Associate Professor Amanda Saracino, a recognised consultant dermatologist in many countries, is widely published, and is invited as
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Scleroderma and Workplace Exposure: What You Need to Know About Risks and Rights with Lawyer Ross Sottile
Posted on
September 23rd, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Ross Sottile, a Melbourne lawyer at Morris Blackburn. He has extensive experience specialising in asbestos, silica and occupational disease compensation claims, supporting his clients through the entire compensation process. This VES focused on the often-overlooked link between occupational exposure
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Scleroderma and Gut Research: Insights from the August VES with Dr Alannah Quinlivan
Posted on
August 20th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Dr Alannah Quinlivan, a consultant rheumatologist at Southern Rheumatology and St Vincent’s Hospital. She is currently undertaking a PhD through the University of Melbourne with a research focus on gut involvement in scleroderma, with her research already being presented
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VES: Scleroderma and Raynaud’s
Posted on
July 28th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Virginia Hickey, principal at the board table and a corporate governance specialist, board advisor, strategy facilitator, lawyer, and company director with extensive commercial, government, and nonfor-profit experience. She is committed to working with organisations with the goal of raising
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Muscle Involvement in Systemic Sclerosis (Scleroderma) with Professor Susanna Proudman
Posted on
June 30th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Professor Susanna Proudman, director of the rheumatology unit at the Royal Adelaide Hospital. As an ARA Michael Mason Fellow, she trained and established one of the first Early Arthritis Clinics in the world. She has been working in scleroderma
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Snuggle Up for Scleroderma: Warming Hearts and Lives This Winter
Posted on
May 30th, 2025
🧣Snuggle Up for Scleroderma: Warming Hearts and Lives This Winter As winter’s chill sets in around Australia, imagine facing the cold with a condition that makes warmth not just a comfort, but a necessity. For over 6,000 Australians living with scleroderma, this is a daily reality. Throughout June, during World Scleroderma Awareness Month, Scleroderma Australia
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Understanding and Caring for Skin When You Have Scleroderma – A Dermatologist’s Guide
Posted on
April 24th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Associate Professor Amanda Saracino, who is a fellow of the Australian College of Dermatologists and an associate professor with the University College London. She’s also recognised as a consultant dermatologist by the Royal College of Physicians and General Medical
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Scleroderma and the Workplace: Insights from March VES
Posted on
March 19th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Amanda, Kate, and Dylan. Amanda is the Chair of the Board for Scleroderma Australia and the President for Scleroderma Victoria. She has a background as an access and inclusion consultant and in the disability employment sector, developing disability action
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Grief and Scleroderma: Insights from Laura Dyas
Posted on
February 12th, 2025
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Laura Dyas, a Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) training director and SPIN-SSLED English program instructor. She has an extensive background in grief and loss and work in the state of Michigan, starting her not for
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