Scleroderma Victoria Incorporated began in 1979 to support people who live with Systemic Sclerosis.

Our mission is to:

  • provide support to those living with scleroderma, their families, carers and friends
  • promote community awareness of scleroderma
  • support research into better treatments for all people with this chronic illness

Scleroderma Victoria is run by a Committee of dedicated volunteers, and you can learn more about them below.

Our Committee

Amanda Lawrie-Jones – President

Amanda Lawrie-Jones

Amanda was appointed as our President in late 2015, and brings with her an array of experience on several Boards. As an experienced HR Professional and Diversity & Inclusion Consultant, Amanda has her own business, Accessible Action, and works with organizations to implement strategies, policies and processes to enable inclusive environments for employees, customers and community members with disability. In having lived experience of disability (Scleroderma and Amputee), Amanda enjoys facilitating training to open peoples minds with personal stories to enable disability confidence. Amanda also loves to travel, especially to New York and has a serious shoe addiction. In 2018, Amanda was a Finalist in the National Disability Leadership Awards.

You can contact Amanda at president@sclerodermavictoria.com.au

Iain Pizzey – Treasurer

Photo of Iain

Iain is a Chartered Accountant and joined the Committee in 2007 to fill the vacant position of Treasurer and to assist Scleroderma Victoria with its endeavours. Iain would like to increase fundraising activities and the financial position of the Association to assist with increasing medical research towards finding the cause of Scleroderma and to enable a cure for this condition. Iain is also the current Treasurer for Scleroderma Australia and we think he is a ‘treasure’ and a true gift to Scleroderma Victoria and Scleroderma Australia!

You can contact Iain at treasurer@sclerodermavictoria.com.au

Jennene Caton – Secretary

Jennene joined the committee in 2014 and accepted the role of Secretary in March 2015.   She is a former Senior Sergeant in the Victoria Police Force.   She took early retirement in March 2014 due to Scleroderma.   During her 26 year career she worked at busy suburban police stations, the Crime Department and State Intelligence Division.   She has a Masters of Leadership and Management (Policing) from Charles Sturt University.   She is spending her retirement raising awareness about Scleroderma.   Along with the role of Secretary, she is also our office Administration Assistant.

You can contact Jennene at secretary@sclerodermavictoria.com.au

Belinda McMaster – Vice President

Belinda PhotoBelinda joined the committee in November 2014 and accepted the role of Vice President in November 2015.   She has a special interest in helping those with Scleroderma as her mother (Jennene) has been living with the disease for many years.   Belinda is a lawyer with the Victorian Government.   She is currently working towards her Masters of Laws through the Australian National University.   Her focus as the Vice President is to review our policy and procedures to ensure that our organisation remains relevant, compliant and up to date.   When she is not working or studying Belinda enjoys travelling to new and interesting places.

You can contact Belinda at vicepresident@sclerodermavictoria.com.au

Gene Swinstead – Committee Member

Gene Swinstead

Gene joined Scleroderma Victoria in 2011 and was President from 2013 to 2015 before resigning this position to take up the role of President of Scleroderma Australia. His continuing mission is to raise awareness of Scleroderma and to pursue funds for research towards finding a cure. Gene facilitates workshops about Scleroderma to medical students at Monash University. Gene joined us after retiring as a newspaper and television executive, working across all states of Australia and overseas. Gene has suffered Scleroderma for 30 years and he knows what it’s all about. Gene loves cooking, gardening, horse racing and playing golf. Gene is married with three daughters, and is also kept company by the family dog ‘Molly’. Gene is also the editor for our quarterly newsletter, so please reach out to him if you have a story to share.

You can contact Gene at newsletter@sclerodermavictoria.com.au

Louise Inglese – Committee Member

Louise IngleseLouise could easily be called a serial entrepreneur, with a passion for taking professional challenges head on and looking to create the best outcome for each opportunity that is presented to her. Having started and sold several businesses in her early career, she is currently a Director of a proudly run Australian manufacturing firm. Louise was diagnosed with Scleroderma in 2016 and like in life, her passion to make the best of every opportunity took the challenge head on and looked for ways to improve her situation. She promptly became a member of the Scleroderma Victoria committee taking on the responsibility of fundraising and personally taking the challenge on of building awareness for Scleroderma at every opportunity.

You can reach Louise at events@sclerodermavictoria.com.au

Bruce Mannion – Committee Member

Bruce MannionBruce has just recently joined Scleroderma Victoria. Due to on-going health issues he has just recently retired. Bruce’s past working life has been many and varied, mainly in the sports and event areas. From starting up the initial Australian Baseball League he moved on to the the Hawthorn Football Club, where he was responsible for all Corporate and Commercial sponsorship and marketing arrangements. From here he undertook a short term contract to establish the marketing and sponsorship for the Fremantle Football Club prior to its inaugural season. Returning to Melbourne, he started his own business in the events area and was active in this for 15 years. Bruce has one daughter and loves fishing, football, reading and coffee!

You can reach Bruce at sunflowerhero@sclerodermavictoria.com.au

Jane Rhyder – Committee Member

Jane in Tassie

Jane joined the committee in 2015 as a representative running a support group in Melbourne. The NE Support Group was started by Jane in 2011 to help those living with scleroderma in her area. The group meet regularly throughout the year offering members the opportunity to spend time together and share their journey with scleroderma. Jane was diagnosed with scleroderma in 2001, and is currently working as a part-time medical receptionist. Jane is a volunteer playgroup leader at her local church and enjoys spending time with her husband Andrew and two adult sons.

You can reach Jane at supportgroups@sclerodermavictoria.com.au

Judy Browning – Committee Member

Photo of Judy

Judy Browning is a member of Scleroderma Victoria for over 20 years taking on the role as the Bendigo Support Group Coordinator. Judy is now the Regional Liaison Officer for all support groups in Victoria and joined the Scleroderma Victoria Committee in 2013 and attends our meetings by teleconference. Judy monitors the Scleroderma Australia Facebook group and provides support to our online community.

You can reach Judy at socialmedia@sclerodermavictoria.com.au

Bridget Naughton – Committee Member

Bridget Naughton Profile picBridget has recently joined the committee after wanting to do more for the Scleroderma Community. In being a country girl at heart, Bridget was born and raised in country Victoria. She now finds herself now living in the city due to employment opportunities and works within the medical industry with a Masters in Virology. Her work involves lots of travel, and she still finds this a strong passion in her personal life. Her adventures include visiting every continent with the exception of Antarctica, for obvious reasons. Being diagnosed with Scleroderma while living abroad in the Netherlands was an additional adventure that she found disrupting and daunting, and one she would have preferred not to have. At her recent wedding, Bridget took this as an opportunity to create awareness of Scleroderma to her friends and family and provided Scleroderma themed bonbonnieres and wedding donations from her guests to a worthy cause. Her young step-son is following in his father’s footsteps of playing hockey on the weekends, which often creates a chilly experience in cheering them both along.

Bridget joined the committee with valuable experience in raising funds and creating connections. You can contact Bridget on fundrasing@sclerodermavictoria.com.au