Posted on November 7th, 2021
So you’re interested in raising money for a good cause — fantastic. Your efforts will be appreciated and will make a great difference in the community. When it comes to fundraising for scleroderma causes, we have a few guidelines and tips to help. Here’s how you can team up with us at Scleroderma Victoria to
Continue reading how to run a scleroderma fundraiser and become a sunflower hero
Posted on October 18th, 2021
A third dose of COVID-19 vaccine has been recommended for people who are severely immunocompromised. The recommendation comes from the Australian Technical Advisory Group on Immunsations (ATAGI), which advises the Australian Government on immunisations. Because scleroderma is a condition that affects immunity, scleroderma patients may be among those who are eligible to get the third
Posted on September 27th, 2021
Been to Our Virtual Education Sessions? Tell Us Why or Why not Have you always wanted to come to a Virtual Education Session and never had the time? Perhaps you never found the topics relevant, or you’ve never even heard of these sessions before now. Whatever the case may be, we want to know! Share
Continue reading feedback wanted! scleroderma virtual education sessions
Posted on August 6th, 2021
The long-anticipated Shine Bright Gala – a fabulous dinner ball to raise money for the Harrison Pennicott PhD Scholarship – is almost here. Don’t miss the fun with a night of delicious food, free-flowing drinks, and more. The event is inspired by Harrison Pennicott – a beloved Scleroderma Victoria ambassador – and is organised by
Continue reading join us at the shine bright gala and help raise money for scleroderma research
Posted on July 20th, 2021
Our Scleroderma support groups are invaluable to many of our Scleroderma Victoria members. But if you’ve never been to a support group before, you might be wondering what actually goes on in one. In this Q&A, we answer some common questions about Scleroderma support groups to help you decide whether you want to join. What
Continue reading everything you ever wanted to know about scleroderma support groups
Posted on May 21st, 2021
You may have seen their faces on the news, on Facebook or even on our blog. They are Harrison Pennicott, a bright and sociable eight-year-old, and his good mate Dyson Heppell, the captain of the Essendon Football Club. Together they make up the dream team for scleroderma awareness and fundraising. Harrison first met Dyson when
Continue reading harrison and dyson team up for scleroderma support
Posted on April 26th, 2021
Our Virtual Education Sessions are a great way to get support with the day-to-day of scleroderma and to connect with us here at Scleroderma Victoria. Always insightful, these sessions run on the second Saturday of every month. In October, we discussed skin, hands, and Raynaud’s phenomenon. In case you missed it, or just need a
Continue reading skin, hands & raynaud’s: take-aways from the virtual education sessions
Posted on March 19th, 2021
March is Autoimmune Awareness Month, an opportunity to educate people about autoimmune diseases. To help raise awareness, we take a look at autoimmune diseases, why they occur, available treatments, and some lifestyle suggestions for managing symptoms. Top facts The general public knows relatively little about autoimmune diseases. A few facts that awareness month is trying
Posted on February 19th, 2021
While online platforms such as Zoom have been fantastic tools for keeping in touch this past year, nothing compares to face to face interaction. As we anticipate the return of in-person support groups for Scleroderma Victoria, we need to ensure that volunteers and attendees follow our COVID Safe Plan. Here’s the step-by-step process for your
Posted on January 18th, 2021
People often ask, ‘what’s the difference between Scleroderma Australia and Scleroderma Victoria?’ Although virtually the same organisation, there are some key differences. Let’s take a look at them to clear up any confusion. Advocacy and awareness Scleroderma Australia takes a national role in raising awareness and advocating for people living with scleroderma. Consisting of delegates