People often ask, ‘what’s the difference between Scleroderma Australia and Scleroderma Victoria?’ Although virtually the same organisation, there are some key differences. Let’s take a look at them to clear up any confusion.

Advocacy and awareness

Scleroderma Australia takes a national role in raising awareness and advocating for people living with scleroderma. Consisting of delegates from each state, Scleroderma Australia is a representative voice for people living with the condition.

They’re at the forefront of coordinating research for new treatments and, crucially, finding a cure. Fundraising is mainly organised via online platforms such as My Cause, to reach a broader national audience.

Scleroderma Australia’s purpose is to:

  • Coordinate and promote scleroderma awareness across Australia
  • Increase community support and engagement for people with scleroderma and their families
  • Advocate for people with scleroderma for improved patient outcomes
  • Coordinate funding for scleroderma research across Australia
  • Support state associations to provide successful and sustainable outcomes

Grassroots support

While the state organisations still play a vital role in awareness-raising, they work more closely with people with Scleroderma on the ground and assist with fundraising. They focus on providing support groups and local events, offering emotional support through discussion of shared experiences and coping strategies.

Scleroderma Victoria provides support to people living with Scleroderma throughout the state, as well as their families, carers and friends. It’s a network that offers support to individuals as they face everyday challenges. It also helps to promote community awareness through word-of-mouth initiatives to connect with those living with Scleroderma.

On a practical level, Scleroderma Victoria:

  • Supports research into better treatments
  • Publishes informative newsletters
  • Grows a network of support groups throughout Melbourne and regional Victoria
  • Funds and organises education, awareness and fundraising events
  • Supports specialists and medical practitioners to build expertise in managing this chronic illness
  • Funds scleroderma nurses at specific hospitals
  • Provides assistance with oral medicine for scleroderma
  • Promotes social inclusion with our Kerry McDonald Equipment Program

Memberships

The structure also reflects the way membership works. Members join at a state level, and the state receives the membership fee. $5 of each state membership fee goes towards the administrative costs of Scleroderma Australia.

Despite the different functions of the state and Australia organisations, none could provide the vital support, research and fundraising without members. Membership is the lifeblood of Scleroderma Victoria and Australia, and we would not exist without our extraordinary community of supporters.

If you would like more information about becoming a scleroderma member, click here.