Virtual Education Session – Scleroderma: Disease Progression Date: April 11, 2026 Time: 10:30 am – 12 noon Location: Online – Google Meet Our virtual education sessions provide accessible, expert-led learning for people living with scleroderma, their families, and the wider community. Each session delivers practical insights, lived‑experience perspectives, and up‑to‑date information to empower participants, build
Living with scleroderma often means navigating complex medical decisions, multiple specialists, and ongoing treatment choices. For newly diagnosed patients and long-term community members alike, it can feel overwhelming. At our February Virtual Education Session, Dr Claire Adams – psychologist and researcher with the Scleroderma Patient-Centered Intervention Network (SPIN) – shared practical guidance on how to
Virtual Education Session – Feb, 2026 Date: Feb 14, 2026 Time: 10:30 am – 12 noon Location: Online – Google Meet Our virtual education sessions provide accessible, expert-led learning for people living with scleroderma, their families, and the wider community. Each session delivers practical insights, lived‑experience perspectives, and up‑to‑date information to empower participants, build knowledge,
Living with scleroderma – or supporting someone who does – can feel overwhelming, especially in the early days after diagnosis. Many people are left with questions, uncertainty, and a strong need for clear, trustworthy information. At Scleroderma Victoria, we believe that knowledge is power. When people are informed, they feel more confident, more prepared, and
This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Laura Hummers, an associate professor of medicine and co-director of John Hopkins Scleroderma Centre. She is also a clinical director in the division of Rheumatology, making her an incredible resource for all things Scleroderma. This article shares Laura’s
In our February Virtual Education session, we were joined again by dermatologist A/Prof Amanda Saracino. She shared her valuable experience and learnings on scleroderma and skin. Here’s a recap of what happened during this month’s session. Morphea vs Systemic Sclerosis One of the hallmarks of scleroderma is the thickening or hardening of the skin.
People with scleroderma often develop abnormalities at any level of the digestive and gastrointestinal tract and despite the best efforts in self-care, urinary or faecal incontinence or constipation may occur. In our November Virtual Education, our guest speaker, Janie Thompson, National Continence Helpline Manager and Nurse Continence Specialist of Continence Foundation of Australia, discussed continence,
The September Virtual Education Session, Scleroderma and Intimacy, covered an important topic that is often overlooked or avoided. Our guest speaker was Chantelle Otten, a Melbourne-based Psycho-Sexologist passionate about empowering people to feel great about their sexuality. She hopes that by normalising talk about sex, pleasure and relationships, we break down barriers, and these important
Our May Virtual Education Session covered ‘Social Security and Your Rights’. We were fortunate to have guest speaker Elizabeth Divers (Liz), a community lawyer from Social Security Rights Victoria (SSRV). SSRV is an independent state-wide community legal centre that specialises in social security and related law, policy and procedure. SSRV provides free legal services to
Covid may have impacted our social lives, but it allowed the virtual world to enter our homes easily and conveniently. We responded to this new reality by going virtual. Knowledge is power, and here at Scleroderma Victoria, we want you to have all the knowledge you need to be empowered and informed. Through these Virtual