In our February Virtual Education session, we were joined again by dermatologist A/Prof Amanda Saracino. She shared her valuable experience and learnings on scleroderma and skin. Here’s a recap of what happened during this month’s session. Morphea vs Systemic Sclerosis One of the hallmarks of scleroderma is the thickening or hardening of the skin.
People with scleroderma often develop abnormalities at any level of the digestive and gastrointestinal tract and despite the best efforts in self-care, urinary or faecal incontinence or constipation may occur. In our November Virtual Education, our guest speaker, Janie Thompson, National Continence Helpline Manager and Nurse Continence Specialist of Continence Foundation of Australia, discussed continence,
The September Virtual Education Session, Scleroderma and Intimacy, covered an important topic that is often overlooked or avoided. Our guest speaker was Chantelle Otten, a Melbourne-based Psycho-Sexologist passionate about empowering people to feel great about their sexuality. She hopes that by normalising talk about sex, pleasure and relationships, we break down barriers, and these important
This month we will be discussing ‘Fatigue and Scleroderma’. Join us for our August Virtual Education Session as fatigue is a common challenge for people living with chronic conditions, including scleroderma. In fact, scleroderma patients in clinical studies have listed fatigue as one of the top 3 symptoms that bother them. With 9 out of
This month we will be discussing ‘Managing your Health with Diet’. Join us for our July Virtual Education Session with Renee Gleeson who has had 25 years experience managing health with diet. Renee is an accredited practicing dietitian with over twenty years experience. Renee has worked in a diverse range of areas of dietetics, ranging
Our May Virtual Education Session covered ‘Social Security and Your Rights’. We were fortunate to have guest speaker Elizabeth Divers (Liz), a community lawyer from Social Security Rights Victoria (SSRV). SSRV is an independent state-wide community legal centre that specialises in social security and related law, policy and procedure. SSRV provides free legal services to
This month we will be discussing ‘Understanding Scleroderma and the NDIS’. Join us for our June Virtual Education Session with our own Amanda Lawrie-Jones, President of Scleroderma Victoria. Amanda is a skilled Access & Inclusion Consultant with decades of organisational capability experience. Amanda has successfully created impact and meaningful change working in both government and
Covid may have impacted our social lives, but it allowed the virtual world to enter our homes easily and conveniently. We responded to this new reality by going virtual. Knowledge is power, and here at Scleroderma Victoria, we want you to have all the knowledge you need to be empowered and informed. Through these Virtual
This month we will be discussing ‘Scleroderma and Mental Health’. Join us for our February Virtual Education Session with guest Speaker Dr Brett Thombs. Dr Thombs and his team focus on developing strategies to improve quality of life and reduce disability among people living with scleroderma. He is the Founder and Director of the Scleroderma
This month we will be discussing ‘The Mouth and Scleroderma’ Join us for our November Virtual Education Session with guest Speaker Dr Tami Yap. Tami completed a Bachelor of Dental Science with Honours at Melbourne University in 2006. In 2013 she became a Fellow of the Royal Australasian College of Dental Surgeons and returned to