This blog post summarises the key insights from the latest Virtual Education Session (VES) led by Dr Laura Hummers, an associate professor of medicine and co-director of John Hopkins Scleroderma Centre. She is also a clinical director in the division of Rheumatology, making her an incredible resource for all things Scleroderma. This article shares Laura’s
In our February Virtual Education session, we were joined again by dermatologist A/Prof Amanda Saracino. She shared her valuable experience and learnings on scleroderma and skin. Here’s a recap of what happened during this month’s session. Morphea vs Systemic Sclerosis One of the hallmarks of scleroderma is the thickening or hardening of the skin.
People with scleroderma often develop abnormalities at any level of the digestive and gastrointestinal tract and despite the best efforts in self-care, urinary or faecal incontinence or constipation may occur. In our November Virtual Education, our guest speaker, Janie Thompson, National Continence Helpline Manager and Nurse Continence Specialist of Continence Foundation of Australia, discussed continence,
The September Virtual Education Session, Scleroderma and Intimacy, covered an important topic that is often overlooked or avoided. Our guest speaker was Chantelle Otten, a Melbourne-based Psycho-Sexologist passionate about empowering people to feel great about their sexuality. She hopes that by normalising talk about sex, pleasure and relationships, we break down barriers, and these important
Our May Virtual Education Session covered ‘Social Security and Your Rights’. We were fortunate to have guest speaker Elizabeth Divers (Liz), a community lawyer from Social Security Rights Victoria (SSRV). SSRV is an independent state-wide community legal centre that specialises in social security and related law, policy and procedure. SSRV provides free legal services to
Covid may have impacted our social lives, but it allowed the virtual world to enter our homes easily and conveniently. We responded to this new reality by going virtual. Knowledge is power, and here at Scleroderma Victoria, we want you to have all the knowledge you need to be empowered and informed. Through these Virtual
This month we will be discussing ‘Scleroderma and Mental Health’. Join us for our February Virtual Education Session with guest Speaker Dr Brett Thombs. Dr Thombs and his team focus on developing strategies to improve quality of life and reduce disability among people living with scleroderma. He is the Founder and Director of the Scleroderma
Commencing at 10.30am. Join us for an informative and interactive session designed to help individuals, families, carers, and community members better understand the National Disability Insurance Scheme (NDIS). We’re pleased to welcome representatives from the National Disability Insurance Agency’s (NDIA) Community Engagement Team who will guide us through the key aspects of the NDIS and
Been to Our Virtual Education Sessions? Tell Us Why or Why not Have you always wanted to come to a Virtual Education Session and never had the time? Perhaps you never found the topics relevant, or you’ve never even heard of these sessions before now. Whatever the case may be, we want to know! Share
This month we will be discussing ‘Dealing with Dry Eyes’ Join us for our October Virtual Education Session with guest Speaker Dr Georgia Cleary. Georgia received her undergraduate medical degree from the University of Western Australia, and has completed two advanced fellowships at the internationally renowned Moorfields Eye Hospital, London and then the Royal Victorian