Resources

What is Scleroderma? Scleroderma is a chronic connective tissue condition and is generally classified as one of the auto-immune rheumatic diseases.

This brochure is provided to all new members when they join Scleroderma Victoria. Join Us

June 29 is World Scleroderma Day.

We advocate for a world where equal access to treatments, quality care and community participation are available to people with scleroderma.

When it comes to fundraising for scleroderma causes, we have a few guidelines and tips to help. Here’s how you can team up with us at Scleroderma Victoria to create your own fundraiser.

The aim of this brochure is to help you understand how to apply for the NDIS as a person with scleroderma.

Regular breathing tests can detect early lung involvement in Scleroderma Patients. This brochure is designed to be a guide, not all written here will be applicable to everyone.

Is the most common early symptom of scleroderma. It is present at one time or another in about 90% of patients.

Because connective tissue occurs throughout the whole body, scleroderma affects many and various organs and can produce a wide range of symptoms, including oral and dental problems. This brochure discusses these problems and steps to minimise oral symptoms and damage.

The purpose of this booklet is to assist people with nutritional concerns relating to scleroderma and to also ensure people continue to enjoy food, sometimes with dietary modifications.

Fatigue is a common challenge for people living with chronic conditions, including scleroderma. In fact, people with scleroderma in clinical studies have listed fatigue as one of the top 3 symptoms that bother them.

People with Scleroderma may experience difficulties with their bladder or bowel.

This brochure provides information about why these problems may occur and advice on how you can get help.

If you or your partner has been diagnosed with scleroderma, you may be wondering how this may affect your sex life. This is a helpful guide and resource for people with scleroderma to discuss with their doctor or partner.

Systemic sclerosis (SSc) has many potential impacts on the skin. The type and severity of the skin involvement will vary and is often related to the underlying subtype of Systemic Sclerosis.

Morphoea (also known as localised scleroderma) is a sclerotic skin condition characterised by thickening/hardening (fibrosis) and inflammation of the skin. There are many subtypes of morphoea which vary according to the location of the areas of involved skin.

As a person with scleroderma, this guide may assist with conversations with your employer or provide knowledge, confidence and understanding of workplace adjustments, and your rights under the Disability Discrimination Act 1992.

The aim of this brochure is to help you undergo blood tests with the minimum of distress and assist the collector to understand your special needs.

When people with scleroderma is hospitalised, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

A care plan form to be used in conjunction with the Hospital Checklist publication.

This brochure aims to make your plans and travel as stress-free as possible, and also as rewarding and exciting as it should be.